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Self-Advocates

Self-advocacy means speaking up for yourself about the rights and responsibilities in your life.

People who do so are called “self-advocates,” and having once learned how to speak up for themselves can assist others in doing so as well.

The birth of self-advocacy started with Bernard Carabello.

From the ages 3 to 21, Carabello lived at Willowbrook State School, an institution synonymous with neglect and deplorable conditions. With incredible strength and resilience, Carabello was instrumental in joining with Geraldo Rivera and others in exposing the abuse and neglect that was happening at the institution. Carabello’s voice was at the center of the movement that would eventually close down Willowbrook and institutions across New York state.

Carabello believed that all people with developmental disabilities should be supported to speak up for themselves. Between 1985 and 1986 Bernard and 12 other self-advocates serving as the Self-Advocacy Association of New York State (SANYS) steering committee worked together to make SANYS a reality. On April 29, 1988 the Self-Advocacy Association of New York State was founded and he started SANYS for that purpose.

Though retired, Bernard remains a passionate advocate on behalf of people with developmental and other disabilities. He is considered one of the great civil rights leaders of our time.

 

Some activities self-advocates are involved in include:

  • Political advocacy
  • Rights education
  • Voting
  • Regional Self-Advocacy Day Conference
  • Fundraising
  • Donations in the community
  • Volunteer in the community
  • Education
  • Newsletter
  • Dances
  • Talent show
GLOW Trotters logo

Join Us!

Arc GLOW currently has three active self-advocacy groups: Batavia, Albion and Mt. Morris. Together they make up the GLOW Trotters.

Friends for the Future

Batavia

Meets at 64 Walnut St. 11:30 a.m. to 12:30 p.m. the fourth Wednesday of the month.

What We Do:

  • Dances
  • Fundraising
  • Donations in the community

 

Contact Advisor:

Kim Travale at KTravale@ArcGLOW.org or (585) 343-1123 ext. 1731

SANSY U

Albion

Meets at Caroline Street and virtually once per month. Date and times vary.

What We Do:

  • Volunteering in the community
  • Education
  • Talent show
  • Newsletter
  • Self-Advocacy Day Conference

Contact Advisor:

Terry Kingdollar at TKingdollar@ArcGLOW.org or (585) 343-1123 ext. 1164

Advocates Coming Together

Mt. Morris

Meets at Hilltop and virtually 2-3 p.m. third Wednesday of the month.

What We Do:

  • Political Advocacy
  • Voting
  • Rights Education

Contact Advisor:

Erika Forbes at EForbes@ArcGLOW.org or (585) 658-2828 ext. 2310